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MDHHS and partners support a continuum of prevention services. The continuum is inclusive of primary, secondary, and tertiary prevention activities. Visit this page to learn more.
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Understanding Blood Spot Storage & Use
Blood spots have always been stored for some period following newborn screening, but the length of time has changed over the years. According to MDHHS policy, dried blood spots can be stored for up to 100 years, with current MDHHS practice indicating that blood spots will be destroyed after 35 years. Blood spots collected since January 1989 remain in storage under this policy.
While in storage, blood spots can be used for newborn screening quality improvement purposes. The stored blood spots may also be requested by a parent, a guardian, or the person from whom the blood spot was taken (if over the age of 18) for their own use. Families also have the option to request that the blood spots be destroyed. Finally, stored blood spots may be made available for de-identified medical and public health research studies, overseen by MDHHS through the BioTrust for Health.
Whether your or your child’s blood spots are made available for de-identified medical and public health research is your choice. Your options for documenting that choice, however, differ depending on date of birth.
To learn more about your options, click on the date range above that corresponds with the date of birth.
All samples received by the state laboratory from infants born before January of 1989 have been destroyed.
Blood spots collected between January 1, 1989, and April 30, 2010, are currently in storage and may be used in medical and public health research under a waiver of informed consent granted by the MDHHS Institutional Review Board.
Call 517-335-4181 or email BioTrust@michigan.gov if you have any questions or need assistance obtaining the directive form. The form may also be downloaded below:
On May 1, 2010, an opt-in process was implemented for blood spot research. Blood spots collected from May 1, 2010, to the present are currently in storage, but will not be used in research unless a signed consent form is on file. All Michigan birthing hospitals and midwives have been instructed to give new parents a BioTrust brochure and consent form around the time that blood spots are collected for newborn screening.
Call 517-335-4181 or email BioTrust@michigan.gov if you have any questions or need assistance obtaining the directive form. The form may also be downloaded below:
A brochure that provides families with an overview of the research use of blood spots through the BioTrust program.
English brochure
Spanish brochure
Arabic brochure
Audio recording of brochure
Effective May 1, 2010, this form allows parents to choose if their child's left-over blood spots can be used in medical and public health research studies. The form is provided by a healthcare team shortly after birth.
BioTrust consent image
Alternate BioTrust consent- English
Alternate BioTrust consent- Spanish
Alternate BioTrust consent- Arabic
You can find answers to commonly asked questions about the BioTrust on the Frequently Asked Questions section of this website:
These directive forms can be used to request that left-over dried blood spots (DBS):
Blood spot directive
Blood spot directive- Spanish
Blood spot directive- Arabic
Directive to use dried blood spots in research
Request return of residual blood spots for personal use
A six-minute YouTube video about how blood spots can be used in research studies and choices for new parents.
This brochure is designed for pregnant persons who are interested in learning more about the newborn screening and BioTrust programs before delivery.
The roadmap infographic provides parents an overview of the newborn screening process and their choices for blood spots after testing.
The BioTrust research report has details about all medical and public health research studies that have been approved to use left-over blood spots from Michigan.
