Health and Support Services
for Families

 1.

A First Step to your Baby's Health Newborn Screening  pamphlet (also in Spanish , Arabic )

13.

Guide-By-Your-Side  pamphlet

 2.

Child Development Wheel  (also in Spanish, Arabic)

14.

Hands and Voices  pamphlet

 3.

Children with Special Needs Fund (website)

15.

Helping Young People Succeed in School  Project Find pamphlet (also in Spanish, Arabic)

4.

Children's Special Health Care Services (website)

16.

Michigan Genetic Counseling Services pamphlet

5.

Concerned About the Development or Health of Your Child?  Early On ^® pamphlet

17.

Michigan Genetic Support Group Directory

6.

CSHCS Emergency Preparedness Guide (website)

18.

MiChild  (also in Arabic and Spanish ) pamphlet

7.

CSHCS Support Parent Training Course

19.

Michigan's Community Hearing Screening Program pamphlet (also in  Spanish ,  Arabic )

8.

Family Guidance: Transition Planning for Youth pamphlet

20.

Resources for Families of Infants and Toddlers with Special Needs pamphlet

9.

Family Guide to Michigan's Children's Special Health Care Services Program

21.

Special Care for Special Kids: A Guide for Michigan Families guidebook

10.

Family Support Network pamphlet

22.

Watch Me Grow Calendar (also in Spanish) (website)

11.

Family-to-Family Health Information and Education Center

23.

Welcome to the Michigan WIC Program (website)

12.

Genetics and Young Children with Hearing Loss   pamphlet

Resource and Referral Information
for Providers

1.

A Guide to Genetics Referral  pamphlet

11.

MCIR  pamphlet

2.

Babies with Birth Defects: A Referral Guide for Michigan Hospitals booklet with sample form

12.

Medical Home for Children with Special Needs  fact sheet

3.

Children's Special Health Care Services  local office contacts (also online at www.michigan.gov/mdch , then search "CSHCS Provider Information")

13.

MI Genetics Connection Resource Center

4.

CSHCS Medical Eligibility Report Form

14.

Michigan Directory of Service Providers for Infants, Toddlers & Students with Disabilities

5.

Community Mental Health Service Programs

15.

Order forms: MiGenetics Connection , Watch Me Grow , Early on and Project Find , Family to Family & Education Center Materials, Early Hearing, Detection and Intervention Program

6.

Early On^® Coordinators listing by county

16.

Top 20 Resource and Referral pocket card

7.

Early On^® /Project Find (website)

17.

Translation and Interpreter Services listing

8.

Early On^®/ Project Find
referral fax form

18.

Web-based Training online at training.mihealth.org Birth Defects Registry Reporting; Newborn Screening;  What is Children's Special Health Care Services?

9.

Hospice Care for Children with Life-Limiting Conditions  fact sheet and Michigan listing

10.

Local Health Department Directory

  (back to top)

Condition Fact Sheets

Newborn Screening

Biotinidase Deficiency

Homocystinuria

Citrullinemia and Argininosuccinic Acidemia  (ASA)

Maple Syrup Urine Disease  (MSUD)

Congenital Adrenal Hyperplasia  (CAH)

Medium-Chain Acyl-Coenzyme A Dehydrogenase Deficiency  (MCAD Deficiency)

Congenital Hypothyroidism  (CH)

Phenylketonuria  (PKU)

Galactosemia

Sickle Cell Anemia

Cystic Fibrosis

Genetic Disorders

22q11.2 Deletion Syndrome

Noonan Syndrome

Angelman Syndrome

Prader-Willi Syndrome

Beckwith-Wiedemann Syndrome

Rett Syndrome

Down Syndrome

Smith-Magenis Syndrome

Fragile X Syndrome

Tuberous Sclerosis

Klinefelter Syndrome

Turner Syndrome

Marfan Syndrome

Williams Syndrome

Neurofibromatosis  (type 1)

  (back to top)

Fetal Alcohol Effects

Prevention Information

1.

Look and Feel Your Best with Folic Acid  pamphlet

2.

Preconceptional Health  resource list

3.

Preventing Birth Defects  pamphlet

5.

Substance Abuse Access Management System, Agency Directory

Other

Family Guide to Respite for Children in Michigan

 Contact us: Genetics@michigan.gov